PAMIS Digital Passports

PAMIS Digital Passports were conceived and developed by people with profound and multiple learning disabilities and their family carers. They have been in development for nearly ten years and are being used across the UK and beyond. They are being used in a wide variety of settings by anyone who needs support to communicate their needs to those around them

The PAMIS passport is a simple, easy to use, flick-through e-book that can be created and displayed on tablet devices, computers and phones. Each PAMIS passport contains information about one person and uses video, photography, sound and text to help that person express their needs. The passport is owned by the individual and is shared with those they need to communicate with. The initiation and development of the passport can come from family carers, paid carers, practitioners, and individuals themselves. The development process has often been used as a way of building a truly person led approach with people who need extra support.

We strongly encourage anyone who is intending to develop a passport for someone else to first develop one for themselves. This allows much greater insight and reflection into the type of information, experiences, media and tone to use within the passport.

Examples of the type of information that people have shared using their passport are

  • How to communicate and converse more appropriately with the person
  • How to meet individual’s sensory needs
  • Engaging with individutal’s needs during care planning
  • Information that supports the social, emotional and physical inclusion of the person
  • Ensuring that the person can maintain and share their social contacts, family stories and memories
  • Holding and sharing Anticipatory and other care plans
  • Detailing medical care procedures
  • Supporting assessment tools, outcomes and recommendations
  • Bereavement support
  • Videos, pictures, playlists and sounds

People who have profound learning disabilities are using PAMIS Passports in a wide variety of locations including home, hospital, school and respite care where they are supporting individuals to express their needs in a simple, effective and person-centred way.

Practical uses of the PAMIS Digital Passport include:

  • Translating how individuals express themselves to less familiar carers
  • Helping individuals interact with their peer group and those around them
  • Establishing a communication pathway – for example, between school and home
  • Empowering families with a tool they can use for training carers
  • Supporting people to understand the needs of the individual

Our digital initiative was part of the reason why we won a
2016 GSK Impact Award.

If you are interested in developing a digital passport for yourself, or the person you support, please contact Catriona Jamieson [email protected]