People with PMLD often have a number of complex healthcare needs. Meeting these needs in a variety of educational, social and health care settings frequently involves the delivery of a wide range of procedures that may be characterised as ‘invasive’. Research has shown that there are a number of barriers to delivering such ‘invasive procedures’ leading to exclusion from services or the safety and wellbeing of the individual being put at risk.
Twenty healthcare interventions have been identified by family carers and staff supporting people with PMLD. These include – tracheal tube replacement, tracheal suctioning, urethral catheters and enemas.
PAMIS believes that it is essential that the design of services, their management, and the commitment and competence of staff are such that all individuals receive whatever procedures they require to maintain their wellbeing in their service settings. This issue is especially relevant at the present time with the integration of health and social care. Strategic service developments need to be in place, supported by local operational policies to enable wider access to invasive procedures. Healthcare staff, together with family carers should use their knowledge and skills to educate social care staff to meet the needs of the people that require these procedures.
PAMIS is finalising a national quality framework and a toolkit on invasive procedures for people with PMLD.
Please contact PAMIS for further information.