How did you first hear about/get involved with PAMIS?
Much to my shame I did not know about PAMIS until I saw the Family Support post advertised on a website. However, I was completely hooked on PAMIS even before I got the job. PAMIS does such wonderful work.
What inspired you to work with PAMIS?
I remember preparing for my interview with PAMIS and reading about the Changing Places Campaign. I was so humbled by the campaign. I distinctly remember thinking how awful it must be to change the person you care for on a toilet floor! PAMIS is so inspiring there are too many things to mention: the families, the staff, the campaigns, the work….
What is your role?
I am the Fife Family Support Service Director. My role is to provide support to families who care for a child or an adult with profound and multiple learning disabilities.
What are your areas of expertise?
I think the PAMIS families are the ones with the expertise, I learn and continue to learn so much from them.
What does working at PAMIS mean to you?
Working with PAMIS can be joyous, heart wrenching, fun and difficult, sometimes all in the one day! But it is always worthwhile and meaningful to me.
What is a typical day for you? Day to day functions?
Each day in PAMIS is different and I love it. My role takes many forms: one-to- one emotional support, training, attending meetings, influencing policy, signposting to other agencies, helping families with grant applications, advice on disability benefits/helping with forms, transition planning, leisure activities and much more.
In essence my role is centred on the needs of PAMIS families. My work is focused on promoting a better quality of life for people with PMLD and their families.
Just as an example, yesterday I met with two wonderful families, their issues included: transition planning and the lack of a tracking hoist. I then had lunch with Nourish (parent run Fife Family Support Group), it was their fifth anniversary, we had tea and yummy cake. Tomorrow, I will be at the Fife PAMIS Friendship Club – great fun.
Tell us something we wouldn’t guess about you?
I love nothing more than watching an old romantic movie on a Sunday afternoon. (but then you might have guessed that about me!).
Why do you think it’s important for people to know about PAMIS and the services they provide?
As one PAMIS family said in a recent quote: “PAMIS is a lifeline for us”
What is your motto, or favourite quote?
S. Covey, 7 habits…”seek first to understand then be understood”